- This event has passed.
Sickle Cell Event
Sunday March 26, 2023
A special sickle cell event at this years Cambridge Festival taking place at The Dekain Centre.
Sickle cell disease is the most common monogenetic disease in the UK, more prevalent than cystic fibrosis. There are 15,000 patient living with this diease living in the UK. The many deficiencies in their care have prompted the Al Parliamnetary Enquiry Group (APPG) wo write a report ‘Noone is listening’.
This profile of this disease will give people a chance to talk to carers and patients, meet the sickle society, be entertained by a free dance show, link up with Uganda, match blood, see a red cell exchange machine up close, learn about the latest treatments and make DNA and help blood matching with sweets.
The local dance group Sin Cru will perform the biogrpahical piece ‘Finest’ about a local patient with sickle cell disease.
For info go to www.festival.cam.ac.uk/events/sickle-cell-and-blood-transfusion-future
What’s Ons are broadcast across the day at 7.50, 10.30, 1.30 and 4.30, and at weekends.
To get your event included email: Karen Stringer